the quiet revolution

...to hypothyric town!

Tired. Epically tired, and permanently cold. Body feels like somebody doubled my density then replaced all my ligaments with old rubber bands. Back hurts. Feeling sooky and whiney.

I want to curl up in bed for a week, preferably with someone providing tea and cuddles on a regular basis.

*makes small, pathetic noises*

So, it looks like the radiation might actually be working. Hooray. Quickly too, by the feel of it. Only 2 weeks ago my thyroid levels were peaking, now they've plummeted.

Have made the executive decision to go off my meds - doesn't seem to be much point in suppressing thyroid function any more. Hopefully this will give me a short reprieve from the tired and acheys. It will at least remove one complicating factor from the equation: now what I am feeling should directly relate to what my body is doing. Will let the doctor tell me off for it tomorrow (he doesn't like it when I make his job redundant. I only go because I can't get the blood test results directly).

So here's to nuclear power, doing it's job and making me feel ick.

Go you little isotopes, go!

Part 1 is HERE

It's been an interesting few months. I've been to talk to the doctors at the nuclear clinic, my potential surgeon and my endocrinologist about my options for further treatment. And in the mean time, my thyroid levels have finally come down into the normal range, and even slightly low, for the first time in almost a year. It's been lovely to have a few weeks of feeling like my old self and I have relished every minute of it. But it's over now; I'm on my way up again, but at least time it's intentional.


To your left is Dr. Hummer. Well, that's not really his name (it's Dr. Wilkinson), but it is his obsession. He drives a Hummer (yes, you guessed that much, I know). He gets articles in the newspaper about why he drives a Hummer (click here!). He has model Hummers in his office (it's true!). He even has Hummers on his official office stationary (evidence provided on request). He is also the man who will be cutting me open should I opt for thyroid removal in Tasmania. His main speciality/earner is gastric banding and he does his consultations in full scrubs. I'm told he's a very good surgeon. He's removed thousands of thyroids. But he's not removing mine, not yet.

We had a good chat though, Dr. Hummer, Alex and myself. I learnt that the parathyroid glands are four little pea-sized spots on the back of the thyroid. I learned that these little glands are very easy to damage as you pull them off the thyroid and try to preserve their neural connections and blood supply. I learned that you really don't want to mess with parathyroid function - that's your calcium, phosphorus and magnesium regulatory system - and I learnt that even if they're successfully preserved in surgery there will be some disruption to function that will likely require monitoring and treatment for the next three months. On the plus side, no more thyroid. On the minus side, three months of feeling crappy, and still a small chance of permanent damage to the parathyroids or the vocal nerves.


To your right is Dr. Keady. She's the nuclear doc. Alex and I had a long and detailed discussion with her about why the last lot of radio-iodine didn't really do much and what our options were. Dr. Keady listened and was thoughtful and took my perspective on board and came to the conclusion that the first dose had at least done something (my goiter is smaller and I had an initial reduction in T3 and T4 levels before spiking again then remaining high), so a much higher second dose should really do the trick. We're talking 600 MBq, the maximum outpatient dose (as opposed to the 250 MBq they gave me last time), and approximately three months to complete thyroid ablation. Provided, of course, that there are no surprises and complications, and even then we're talking perhaps 90 % confidence. And we'll have to do another technetium scan ($270), to make sure there are no more surprises. But there's no cutting, no hospital stay, no anaesthesia, no two weeks off work to heal, no risks to the parathyroids and no $4 000 hospital bill.

So, we have:

Guaranteed thyroid death + risks of surgery + risks of anaesthetic + risks to parathyroids + risks to vocal nerves + hospitalisation +time off work + whopping great bill + 3 months of feeling crappy

VS

90% likely thyroid death + a few hours in clinic + 0.01 % increase in risk of throat cancer + no time off work + affordable bill + 3 months of feeling crappy (technetium scan pending)

So yes, I chose the nuclear option again. It seemed so much more straightforward and if I'm going to feel crappy for three months either way, I'll take the non-bleedy option, thank you.

But of course it's never clear-cut or straightfoward, is it?

( Surprises, complications & pretty pictures )

At 2 o'clock today I head back to the hospital to take my radio-active pill.

There's no turning back now, but neither is there any guarantee it's going to work. In three months' time I might be giving Dr. Hummer another call.


My thanks to the staff at Regional Imaging Tasmania - Calvary Hospital for letting us take photos of all the goings on.

Officially Not A Good Day today.

Not only did I fail at sleep last night, I totally failed at today.

I did actually make it into work, where I proceeded to burst into tears in front of my colleagues.

Then a couple of hours later I managed to crash and burn whilst still at work. I had to be helped to the sick bay for a lie down as my body decided to shut down and hit me with a massive hit of adrenaline at the same time. There's nothing like being too weak to stand unassisted whilst trembling uncontrollably for an hour to really make your day.

Alex had to be called to take a taxi out to the office so he could drive me home. =o(

Evidently somebody's still a bit thyrotoxic.